RRePS

Réseau de Référence en Pathologie des Sarcomes des tissus mous et des viscères

Sarcomes - GIST - Desmoïdes

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Data dictionary


Birth date
ID : 140
Type : Free value
Content : DATE
Mandatory : Yes
Multiple values : No
Unique : No
Description : The patient's birth date

Sex
ID : 141
Type : Constrained
Content : TEXT
Mandatory : Yes
Multiple values : No
Unique : No
Description : The patient's gender
Possible values :
Female, Male

Patient information
ID : 1032
Type : Constrained
Content : TEXT
Mandatory : No
Multiple values : No
Unique : No
Description : Consent information
Possible values :
Uninformed, Addressed mail, No opposition, Opposition, Consent

Initials
ID : 1031
Type : Free value
Content : TEXT
Mandatory : Yes
Multiple values : No
Unique : No
Description : Patient initials : 4 characters (2 of Lastname, 2 of Firstname)Attention to compound names

Significant previous history
ID : 1
Type : Constrained
Content : TEXT
Mandatory : No
Multiple values : Yes
Unique : No
Description : No: no significant previous historyNF1: presence of neurofibromatosis type 1 or Recklinghausen diseaseNF2: presence of neurofibromatosis type 2Radiation therapy: tumour developed in a previously radiated areaLymphoedema: tumour developed on a preexisting lymphoedemaGardner: presence of a Gardner syndromLi Fraumeni: presence of a Li Fraumeni diseasePrevious cancer: the patient has previously developed another cancer different from the current tumourOther: other significant previous history with a possible link with the current tumour
Possible values :
No, Previous cancer, NF1, NF2, Gardner syndrome, Li Fraumeni syndrome, Retinoblastoma syndrome, Immunodepressed - HIV, Immunodepressed - other, Maffucci syndrome, McCune-Albright syndrome, Werner syndrome, Other genetic disease, Other, Unknown, Familial GISTs, Stratiakis-Carney dyad, Carney Triad, Other malignancy in family

Centre (RRePS)
ID : 1070
Type : Constrained
Content : TEXT
Mandatory : Yes
Multiple values : No
Unique : No
Description : Centre RRePS
Possible values :
Lyon CLB, Hôp. Charles Nicolle, CHU Rouen, Cy-Path, Hôp. Pontchaillou, Institut d'histopathologie de Nantes, Labo. des Feuillants, Villejuif IGR, Cabinet de la Roquette, Cabinet de Reims, Cabinet d’Amiens, Cabinet Mathurin, Cabinet de Rennes, Centre Patho Dijon, Saint-Louis, Bergonié, Curie, Nice CAL, Dijon CGFL, Caen CFB, Marseille IPC, Nancy ICL, Lille COL, Montpellier ICM, Angers ICO, IUCT Toulouse, Strasbourg CHU, CJP, Paris Henri Mondor, Timone, Cochin, Rennes CEM, Limoges Dupuytren , Tours Trousseau, Nantes CHU, Haut-Lévèque Bordeaux, Croix Rousse Lyon, Ambroise Paré APHP, CPS Strasbourg, Hôp. Civil Strasbourg, CHRU Caen, CHRU Brest, CHRU Montpellier, CHU Nancy, Rangueil Toulouse, Purpan Toulouse, CHRU Lille, CHRU Angers, MEDIPATH, APHP Saint-Antoine, CHR ORLEANS, Cabinet Bièvres, Nice CHU, Atalante Pathologique

Creation date patient
ID : 181
Type : Free value
Content : DATE
Mandatory : Yes
Multiple values : No
Unique : No
Description : The date when the patient has been created in the database